Families Moving Forward Website Privacy Policy

This Privacy Policy describes how Seattle Children’s Hospital (“Seattle Children’s”) and its Families Moving Forward Program collect and use data about you through the Families Moving Forward Website (“FMF Website”), including all website pages whose URL includes “familiesmovingforwardprogram.org,” or “familiesmovingforwardprogram.com,” and through other electronic communications between you and Seattle Children’s relating to your use of the FMF Website.

Seattle Children’s is committed to providing its users with an Internet experience that respects and protects their personal privacy choices and concerns. The following discloses our information gathering and dissemination practices for the FMF Website. The FMF Website contains hyperlinks to other websites. Seattle Children’s is not responsible for the privacy practices or the content of such websites.

Web Traffic Data Collected

We may use third party service providers to make the FMF Website available to you and may collect certain web traffic data necessary for the FMF Website to function which may include IP addresses of browsers that visit the FMF Website and other usage data. These data may be used to diagnose technical issues and maintain site security and will not contain your name or email address.

Other Information We Collect and How We Use It

Our website uses a registration form for health care providers trained or seeking training to access training materials and practice resources. We collect a registrant’s organization, name, phone number, email address, recovery email address, username and password.

We use the collected information to verify that the user is the same individual who has applied for and paid for or completed training provided by Seattle Children’s or an affiliated organization providing training. The information is used to provide access to proprietary training materials and materials for health care practitioners to use once training is completed. A user’s access is revoked if they do not complete training.

We may also use the information described above to periodically contact practitioners who have completed training to: (1) verify and update contact information; (2) gather a report of program and resource use; (3) provide program updates; and (4) determine practitioner preferences for sharing their information with new program partners. You may request to be removed from email lists by responding to any individual message or by emailing fa*******************@se**************.org.

If a user so requests, we may use the user’s contact information to send the user additional information about Seattle Children’s, the Families Moving Forward Program, or program affiliates.

Disclosure of Your Information

We disclose a user’s information, including name and email address, with program partners and affiliates who process training applications and provide program training, including the Florida Center Training Institute (FCTI), to verify a user’s application and registration for training. We disclose name and email address of past trainees with FCTI to enable FCTI to contact past trainees with information about additional relevant trainings offered by FCTI. If a user requests, we may disclose the name and email address of the user to affiliates, partners, contractors, agents, or other appropriate parties as necessary to satisfy the user’s request for more information and resources.

With a user’s express permission, we may disclose their name and email address to FASD United for the purpose of placing the user on an FASD United directory of resources for families affected by FASD/PAE. The FMF Website will link to this FASD United directory.

The information we collect is not used for any purposes other than those described above and will not be disclosed to anyone other than Seattle Children’s and its affiliates, partners, contractors, and agents, unless necessary to comply with a court order or other legal process, to protect the rights or property interests of Seattle Children’s, or at the user’s request.

The FMF Website, including the FMF Client Portal, is not intended for storage of any identifiable patient information, including information protected under the U.S. Health Insurance Portability and Accountability Act (“HIPAA”) and/or applicable state privacy laws. Users are prohibited from posting or entering such information to the FMF Website, including in the FMF Client Portal, or transmitting such information to Seattle Children’s in electronic communications related to the FMF Website.

Security

This website has security measures in place to protect against the loss, misuse and alteration of the information under our control. Information is stored on servers. Access to change or edit content/information is restricted to those authorized by Seattle Children’s to do so.

The safety and security of your information also depends on you. You have chosen a username and password for the use of the FMF Website; you are responsible for keeping your username and password confidential. Please do not share your username and password with anyone.

Unfortunately, the transmission of information via the Internet and through electronic communications is not completely secure. Although we take appropriate precautions to try and protect your data, we cannot guarantee the security of your data transmitted to the FMF Website or in electronic communications about your use of the FMF Website. Any transmission of data is at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the FMF Website or in your operating system.

Updates and Changes to Privacy Policy

We reserve the right, at any time, to add to, change, update or modify this Privacy Policy, simply by posting such change, update, or modification on the FMF Website. Any such change, update, or modification will be effective immediately upon posting.

Linking from the FMF Website

The FMF Website contains hyperlinks to websites offered by, owned, maintained, and controlled by parties other than Seattle Children’s. Such hyperlinks are provided for reference and convenience only. Seattle Children’s does not control such other websites and is not responsible for their content; nor does Seattle Children’s inclusion of hyperlinks to such websites imply any endorsement of the material on such websites or any association with their operators. Unless otherwise specifically stated on this FMF Website, Seattle Children’s does not endorse any product or service or make any representation regarding the reliability, quality or accuracy of any products or services featured in, or linked to, any content appearing on this FMF Website.

Disclaimers

The information on this FMF Website is provided as a courtesy by Seattle Children’s and its Families Moving Forward Program. Seattle Children’s expressly disclaims any representation or warranty, express or implied, concerning the accuracy, completeness or fitness for a particular purpose of the information.

As further detailed in the FMF Website Terms of Use, persons accessing this information assume full responsibility for the use of the information and understand and agree that Seattle Children’s is not responsible or liable for any claim, loss or damage arising from the use of the information.

References to specific products, processes, resources, websites, or services do not constitute or imply recommendation or endorsement by Seattle Children’s. The views and opinions of the document authors do not necessarily state or reflect those of Seattle Children’s.

All matters relating to the FMF Website shall be governed by and construed in accordance with the internal laws of the State of Washington without giving effect to any choice or conflict of law provision or rule (whether of the State of Washington or any other jurisdiction).

Questions or Comments?

If you have any questions about this Privacy Policy or Terms of Use, the practices of this FMF Website, or your dealings with this FMF Website, you may contact:

Families Moving Forward Program
Seattle Children’s Hospital
M/S CURE-3
1920 Terry Avenue
Seattle, WA 98101
fa*******************@se**************.org

Privacy Office
Seattle Children’s
M/S 818-CM
818 Stewart St.
Seattle, WA 98101
206-987-1200
866-987-2000, extension 7-1200 (toll free)
Contact the Privacy Office  

4889-2596-5708, v. 8